Consider a problem that vEDS families face and a social media post or doctor’s office brochure that might be able to solve that problem. Write a proposal for a brochure or social media post and convince a team next semester to complete this as their group project. Remember that vEDS families are already experts on vEDS. They need help understanding and coping with ancillary health policy and legal issues. Paper should be a minimum of three pages and one page with work citations. Please use the provided template to create proposal.
https://m.facebook.com/pg/cureveds/videos/ [All of them are useful, but please pay particular attention to the following videos entitled:
As many of you know our founder and president Kyle:
Dolliver testified on SB 748 recently,
vEDS CommunityQ&A, Dr. Peter Byers on the genetics of vascular Ehlers-Danlos Syndrome, Dr. Sherene Shalhub, Dr. Shaine Morris at the Ryan’s Challenge vEDS Conference; the Q&A film features patients with vEDS &/ their parents asking questions of geneticists and specialists in vEDS; you may see other professors you recognize from departments across campus including but not limited to Dr. Oden, Dr. Randall, Dr. Langley from Psychology, Dr. Fulton & me], plus, 3) the following YouTube link video: Ryan’s Challenge.
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